Sepsis home
Sepsis families home
Sepsis sepsis support

Family support

We know that your child’s diagnosis of sepsis is a life changing event that often involves a significant period of hospitalisation with many medical teams. The lifelong impacts of sepsis can require ongoing care for many years. Parents have described a sense of isolation in their child having had, and potentially being significantly affected by an unknown or unfamiliar condition. Given this, we want families to be well supported and have access to useful information and resources.

Family Support Network

We would like to invite you to join our statewide Family Support Network. Once registered, you may choose to access any (or all) of the following:

  • information and resources about paediatric sepsis
  • opportunity to provide feedback about the development of clinical and family educational materials
  • involvement in a Peer Mentor Program, providing one on one support to other families
  • receive updates about the project developments
  • focus group discussions and/or
  • opportunities to share your story.
Please register

Peer Mentor Program

The Peer Mentor Program aims to provide families with the unique understanding, encouragement and support which only another parent who has walked a similar path can provide. The program is currently offered as a pilot, in collaboration with Children’s Health Queensland Bereavement Service, and can be offered to any family within Queensland as the support is provided via phone and email.

Peer Mentors are parents and carers who have been referred by a staff member, family at Children’s Health Queensland or self-referred as someone who would like to provide peer support and information on “navigating the journey” of sepsis treatment and medical care or bereavement. Peer Mentors are required to participate in extensive training prior to commencement and continue to be provided with ongoing support and supervision by Peer Mentor Program Leads throughout their time with the program.

Peer Mentors have first-hand experience with:

  • adjusting to a child’s sudden and potentially lengthy hospital admission
  • identifying services and resources that may be helpful during this time, and following discharge
  • caring for the emotional needs of other children in the family
  • understanding grief and adjustment associated with a child’s diagnosis of sepsis and the lifelong impacts
  • returning to everyday activities, including employment
  • communicating with other family members and friends.

If you would like to register to be a Peer Mentor and provide support to other parents and carers, please complete the Registration of Interest form.

For more information, please contact the Peer Mentor Program Lead, paediatricsepsis@health.qld.gov.au

Please register
Peer Mentees are parents and carers whose child has recently been diagnosed with sepsis and who are seeking support and information from someone else who has walked a similar path.
Please register
Good

Mentor name

Sed egestas, ante et vulputate volutpat, eros pede semper est, vitae luctus metus libero eu augue. Morbi purus libero, faucibus adipiscing, commodo quis, gravida id, est. Sed lectus. Praesent elementum hendrerit tortor. Sed semper lorem at felis. Vestibulum volutpat, lacus a ultrices sagittis, mi neque euismod dui, eu pulvinar nunc sapien ornare nisl. Phasellus pede arcu, dapibus eu, fermentum et, dapibus