Your stories

Seventeen-year-old Asha was diagnosed with Ewing Sarcoma, a type of bone cancer that mostly affects children and young people.

Spencer was playing happily with his truck at his Brisbane home one day when he tried and failed to stand up. Earlier that day in 2019 Spencer, who was three days away from his second birthday, had fallen over suddenly.

Sophie was in constant pain, which was impacting her schooling and her day-to-day life. After being referred to the Queensland Interdisciplinary Paediatric Persistent Pain Service she developed strategies to overcome her pain – and learned she was stronger than she thought.

Four-year-old Roman’s life changed forever in 2018 when what was first thought to be a common cold ended in a diagnosis of Granulomatosis with polyangiitis, a rare life-threatening disorder that causes inflammation of the blood vessels in the nose, sinuses, airways, lungs and kidneys.

Two-year-old Miranda from the Atherton Tablelands was diagnosed with retinoblastoma (a type of cancer in the eye) just before her second birthday. Her journey began when her mum, Yolanda, noticed a strange white reflection in Miranda’s right eye.

Sixteen-month-old Mason, of Alexandra Hills, was born with Allan-Herndon Dudley syndrome, also known as MCT8 deficiency, a rare condition that causes intellectual disability and problems with movement.