Your stories

Jarvis was diagnosed with Fibrodysplasia Ossificans Progressiva at the age of two - a rare genetic disease caused by a mutation of the body’s repair mechanism that causes bone to grow over tendons, ligaments and muscles.

Arwen’s parents thought their active nine-year-old girl had just picked up a stomach bug from a friend and was a little exhausted after a busy school term. However, the illness meant they missed the tell tale signs of Type 1 Diabetes – tiredness, increased thirst and urination.

Indianna was diagnosed with clubfoot when her mum, Jennifer, was only 12 weeks pregnant. Clubfoot is the most common congenital deformity, affecting one in 1000 live births around the world. The condition leaves the tendons in the foot shorter than usual, resulting in the foot being twisted out of shape.

Chloe was just a typical, happy, energetic three-year-old, when she suddenly began to stumble a bit while walking. Two weeks later, her Mum, Holly, noticed that her legs felt “cold as ice” and soon after she couldn’t move them at all.

Avid gamer and Melbourne Storm fan, Ethan, was diagnosed with a milk allergy at 10 weeks old but it wasn’t until his first birthday that his family discovered the severity of the allergy when he went anaphylactic shock after accidentally drinking some milk.

Arisha was diagnosed with Ewing’s sarcoma – a cancerous tumour – in her left shoulder in December 2015. After undergoing chemotherapy for two months, Arisha underwent surgery, followed by a further 10 months of chemotherapy. In December 2016, she was given the all-clear.