Your stories

Just before his 17th birthday, Lewis from Darwin, experienced unexplained dizziness and nausea. A trip to the GP eventually led him to a referral for a scan to investigate what was happening in his body and a tumour the size of a large egg was found on Lewis’ brain.

Almost two years on from a near-fatal stroke experience, Anthea from Toowoomba is a happy, healthy toddler. She is a strong, determined little sister to Kai and daughter to Karli and Dan.

Twenty-month-old Amy has 22q11.2 deletion syndrome, a rare disorder caused by the deletion of a small part of chromosome 22, which left her with a cleft of the soft palate.

Fifteen-year-old Connor is lucky to be alive after his skull was shattered after a cliff fall in March. The injury meant he has to learn to speak, read and write again, but his determination is inspirational.

Melina was just two-years-old when her parents, Christina and Matt, noticed she was asking for water more frequently. They never thought this thirst would lead to a type 1 diabetes diagnosis.

Riley looks like a typical four-year-old. However, inside his body, it’s a different story. Riley has Congenital Dyserythropoietic Anaemia (CDA), a rare type of anaemia, which affects the production of his bone marrow and means there are not enough blood cells to carry oxygen throughout his body.