ePPCS (Telehealth Paediatric Palliative Care Service)

The Telehealth Paediatric Palliative Care Service (ePPCS) provides physical, emotional, spiritual and psychological support to children who have a life-limiting condition. Our focus is on relieving symptoms and enhancing the child’s quality of life. Supporting families (including siblings) of children with a life-limiting illness is also an important part of our service.

ePPCS can provide a range of support including:

  • management of pain and symptoms
  • care coordination
  • home and school visits
  • links to community support services
  • assistance with equipment needs
  • practical and emotional support
  • pastoral care
  • bereavement support.

Clinics

The ePPCS team is based at the Queensland Children’s Hospital in Brisbane. Families can dial in and meet the team via a Telehealth video call from home or a local healthcare facility/hospice. Families can choose whether they would like a local healthcare professional to be present during their video call to offer-face-to-face-support.

Families can also access face-to-face care at the Paediatric Palliative Care Clinic, Level 2(2e), Queensland Children’s Hospital, 501 Stanley Street, South Brisbane, as well as other care settings in the Brisbane metropolitan area by prior arrangement.

Who can access this service?

New and existing patients within the catchment area

Referrals are accepted up to a child’s 18th birthday (young people are usually transitioned to adult services by this time).

Transition to the adult Specialist Palliative Rural Telehealth Service (SPARTA) can be coordinated (via GP referral) for young people who are 18 years and over.

Catchment area

This service is available to children with a Queensland residential address outside of the South East Queensland region, with a focus on children who live in regional and remote areas.

For families residing in the Sunshine Coast, Gold Coast, West Moreton and Northern New South Wales, Telehealth access can be coordinated by contacting the Paediatric Palliative Care Service.

Do I need a referral?

Yes. You will need a referral to access this service.

How do I get a referral?

Referrals are accepted in consultation with your GP or paediatrician.

What to expect at your first appointment

We encourage all parents/guardians who are directly involved in the child’s care to attend the first ePPCS appointment. You may wish to prepare some questions to ask your ePPCS team during your first Telehealth appointment. Here for you is a booklet co-created by Paediatric Palliative Care Australia and New Zealand (PaPCANZ), which is designed to help guide you through the types of questions and topics you may wish to discuss with your child’s palliative care team.

To confirm or change appointments please call us on 07 3068 1539.

Information for Health professionals

Referral instructions

Referring doctors should ask all parents/guardians who are directly involved in the child’s care to attend the first appointment.

Urgent referrals or enquiries

For urgent assistance call the 24-hour Paediatric Palliative Care Service.
t: 1800 249 648

Alternatively, call the Queensland Children’s Hospital switchboard and ask to speak to the palliative care consultant (or fellow) or the paediatric fellow on duty.
t: 07 3068 1111

Useful resources for clinicians

Palliative Care in Paediatrics

 

This service is available

via Telehealth

Contact details

t: 07 3068 1539
t:
1800 249 648 (toll-free 24/7 palliative care support and advice)
e: E_PPCS@health qld.gov.au

Operating hours

Dedicated Telehealth clinic hours
Friday 10am-3pm
Appointments and allied health support can be arranged on request at other times Monday to Friday.

After-hours support and advice is also available, via the Paediatric Palliative Care Service.
t:  1800 249 648 (toll-free)

Resources

Palliative Care in Paediatrics
A Practical Guide to Palliative Care in Paediatrics
Paediatric Palliative Care: A family companion
Quality of Care Collaborative for Australia in Paediatric Palliative Care (QuoCCA)
Palliative Care Australia