Spinal Muscular Atrophy

Nusinersen is a medication that is available for treatment of Spinal Muscular Atrophy (SMA). It is given via an injection into the spinal canal. Please watch Byron as he tells the story of his visit to hospital for Nusinersen, so you can learn what to expect when you come to QCH for your treatment.

QCH Neurosciences – Neuromuscular Service would like to acknowledge the Foundation, Juiced TV, staff and Byron, as without their contributions this video would not be possible.

Useful links

Family support organisations:

This service is available at

Metabolic Medicine and Neurosciences (6c)
Queensland Children’s Hospital

Level 6
501 Stanley Street
South Brisbane
QLD 4101
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Contact details

t: 07 3068 2880  |  07 3068 1111 (after hours via hospital switchboard)
e: CHQ_Neurosciences@health.qld.gov.au

Operating hours

Monday to Friday, business hours 8am-5pm (excluding public holidays).

Resources

Family Handbook for Neurosciences
New diagnosis of Epilepsy fact sheet for young people and their families
Patient Travel Subsidy Scheme
View all epilepsy fact sheets
View all neurology fact sheets