Haematology and Haemophilia

The Haematology and Haemophilia Service provides care and treatment for children and adolescents with benign (non-malignant) blood diseases/disorders including:

• haemoglobinopathy (for example sickle cell disease) and thalassemia
• inherited red cell disorders
• inherited bleeding disorders, including haemophilia A and B and von Willebrand disease
• thrombotic disorders and thrombophilia
• anticoagulation service
• immune and non-immune cytopenias
• inherited neutropenia and thrombocytopenia
• iron deficiency
• neonatal haematology
• antenatal counselling for benign haematological disorders.

The service also provides antenatal counselling for inherited haematologic disorders and includes the Haemophilia Centre for children with inherited bleeding disorders.

We have developed a suite of resources for some of the most common conditions we help families manage.

Haemophilia

• Managing haemophilia at school fact sheet
• Haemophilia school medical action plan
• Haemophilia contact sheet – who to contact and when
• Mild Haemophilia & other mild inherited bleeding disorders contact sheet – who to contact and when

Sickle cell disease

• Managing sickle cell disease at school fact sheet
• Sickle cell disease school medical action plan
• Sickle cell disease contact sheet – who to contact and when

Mild bleeding disorders

• Managing mild bleeding disorders at school fact sheet
• Mild bleeding disorders school medical action plan
• General haematology contact sheet – who to contact and when
• Haematology anticoagulation service contact sheet – who to contact and when

Clinics

General Haematology
By appointment
Level 3 (3c), Queensland Children’s Hospital, South Brisbane 4101
Monday mornings
Tuesday mornings and afternoons
Wednesday mornings and afternoons
Telehealth clinics – 3 clinics per month.

Haemophilia Centre
By appointment
Level 3 (3c), Queensland Children’s Hospital, South Brisbane 4101
Thursday afternoons
Telehealth clinics – 2 clinics per month

Outreach Clinics
Gold Coast University Hospital  |  2 per year
Nambour/Sunshine Coast  |  2 per year
Toowoomba  |  2 per year
Rockhampton  |  1 per year
Mackay  |  1 per year
Cairns  |  1 per year
Townsville  |  1 per year

Who can access this service?

New patients

Referrals are accepted up to a child’s 16th birthday.

Existing patients with complex care needs

Referrals are accepted up to a child’s 18th birthday (patients are usually transitioned to adult services by this time).

Catchment area

This service is available to children living in Queensland and northern New South Wales.

Do I need a referral?

You will need a formal referral to access this service.

How do I get a referral?

Referrals are accepted from:

• general practitioners
• specialists.

Other referral information

Parents should speak with their local GP or specialist about being referred to the Haemotology Service and/or Haemophilia Centre.

Please contact the Patient Call Centre to confirm or change appointments.
t: 1300 762 831

Information for health professionals

Referral instructions

Patients are generally seen by a local paediatrician prior to referral.

Find out more about how to refer a patient.

Please contact the haematology team member on-call via the hospital switchboard to discuss referrals.
t: 07 3068 1111

Useful links

Australian Haemophilia Centre Directors’ Organisation
Haemophilia Foundation Australia
Haemophilia Foundation Queensland
World Federation of Hemophilia
National Blood Authority
Spleen Australia

Our team

Director

Dr Simon Brown