PICU Long Term Outcomes (PICULTO)

smiling kids

When a child is admitted to a Paediatric Intensive Care Unit (PICU) it can be a scary and stressful time for their family. The challenges children and families then face as they transition from PICU back to their normal routine can often be overlooked.

To help us understand these challenges, we are conducting the PICU Long Term Outcome (PICULTO) study, which aims to investigate how children and families function following a PICU admission. Specifically, we are interested in how we can improve our care and survivorship.

The purpose of this project is to:

  • Identify PICU treatments which may contribute to poorer child development and functioning later in life
  • Determine the magnitude of impact of PICU admission on family functioning
  • Identify former PICU patients in need of further support

We firmly believe that screening patients and their families for child development, functioning and quality of life risk factors is an important part of providing patient- and family-centred care in PICU. This study, and ongoing research program, will allow us to evaluate the impact our treatments are having on patients and their families so that we can continue to improve the level of care we provide. This project will also provide important information for health service planners about resource requirements arising from the long-term health effects of critical illness and its treatment in the youngest and most vulnerable members of our society.

We are an interdisciplinary team of researchers, nurses, PICU consultants and neuropsychologists from the Queensland Children’s Hospital and the University of Queensland. We invite you to consider participating in the PICU Long Term Outcome study. If you are happy to participate, please click on the link below to complete the questionnaire. For convenience, you are also given the option to save a partially completed questionnaire and return later. Your responses are confidential and maintained on a secure server. Your information will only be accessible to the PICULTO researchers.

While care for children in Australian PICUs is high quality and safe, there are many things we still need to learn about how the PICU experience affects patients and families. We believe that children and families deserve the best care and support during this difficult time. The more we learn, the better care we can provide for extremely ill children.

The Children’s Health Queensland Hospital and Health Service Human Research Ethics Committee (HREC) has approved this study. If you have any concerns and/or complaints about the project, the way it is being conducted or your child’s rights as a research participant, and would like to speak to someone independent of the project, please contact the HREC Coordinator.
t: 3069 7002
e: CHQETHICS@health.qld.gov.au

Click Here for PICULTO Survey

Location

Centre for Children’s Health Research
Queensland Children’s Hospital Precinct
Paediatric Critical Care Research Group
Level 7, 62 Graham Street
South Brisbane, Qld, 4101
Australia

Central team (CCHR – Brisbane)

For study queries contact

Debbie Long
Debbie.Long2@health.qld.gov.au
t: 07 3069 7211

Central Team Investigators

Debbie Long RN PhD
Debbie.Long2@health.qld.gov.au

Dr Christian Stocker
Christian.Stocker@health.qld.gov.au

Jessica O’Leary Schults
Jessica.Oleary@health.qld.gov.au

Dr Nelson Alphonso
Nelson.Alphonso@health.qld.gov.au

Belinda Dow PhD
Belinda.Dow@uqconnect.edu.au